Talk about a LIFE

Discussion in 'General Discussion' started by littleiron, Dec 28, 2006.

  1. littleiron

    littleiron Little I.N.S.A.N.E IroN

    Joined:
    Dec 19, 2002
    Posts:
    476
    News Credits:
    5
    Trophy Points:
    111
    Likes:
    +5
    Brave man needs HELP

    Ming Feng, my friend, a fellow hard-core Transformers fan, the current holder of www.tfclub.com, is also a long term dialysis partient who is seeking advice on catheter-implanting treatment.

    Suffer from pain for more than ELEVEN YEARS, this man is now still strugglling to live on dialysis, however the dialysis becomes more and more dangerous for him --- It might end his life by any moment. He named himself Starscream on the internet because he truly belives in such a immortal spark. His desire and courage to live is the strongest I'v ever heard of.

    However, the hospitals in his city has only a few successful cases on this serious operation and such a complicated case has never happened in china before.According to our inverstigation, some countries, especially in North Europe, do use catheter instead of native fistula to treat dialysis patients. The quality of catheters and the success rating of operations are much higher than in China. Please help us look for more information in this area. You are very very appreciated!
     
  2. littleiron

    littleiron Little I.N.S.A.N.E IroN

    Joined:
    Dec 19, 2002
    Posts:
    476
    News Credits:
    5
    Trophy Points:
    111
    Likes:
    +5
    Here is an unofficial description of his case


    Feng, Ming

    Gender: Male
    D.O.B: June 16th 1978
    Nationality: China
    People: Han
    Residency: Guangzhou

    Main case history:

    About 7 months old:
    Wilm’s tumor (nephroblastoma) detected in both kidneys; the whole right kidney and two thirds of left kidney operated with nephrectomy. After this operation, only one sixth of the kidney function left; one third of the left kidney worked well.

    Childhood:
    “Undescended testis”, operated twice;

    October 1995:
    Some symptoms occurred, including dropsy, kidney hypertension; chronic nephritic syndrome etc; treated in hospital.

    November 1995:
    Acute appendicitis, operated successfully; but the kidney was further damaged; must be treated with hemodialysis: a catheter was plugged into the vein below the right clavicle for hemodialysis; meanwhile, a native av fistula was developed in the humerus artery of the left hand for long-term dialysis; the operation was successful; after the catheter was unplugged, the fistula worked well, but the piercing was always pretty tough, which needed assistance from specialists.

    August 1998:
    A pseudo-aneurysm found in left hand, which was operated successfully; the tumor was identified as calcified fibers; the fistula still worked but the renal edema on the left hand became worse

    August 2004:
    The renal edema on the left hand made the piercing-dialysis undoable; a catheter was plugged into the vein in the right neck for dialysis; the fistula in the left hand was ligated; another fistula was developed in the humerus artery in right hand; after the operation, the right hand swelled all the time; inspection figured that the narrowness of the vein below the right clavicle prevented the refluence of blood; a catheter was plugged into the vein in the left neck for dialysis

    November 2005:
    The catheter in the vein in the left neck got congested; the catheter was moved to right neck for dialysis; a traumatic arteriovenous fistula was developed at the intersection of the left thigh vein and left thigh artery; the operation was a success; however, the fistula in right hand was ligated unsuccessfully; right hand got even worse;

    March 2006:
    The fistula in right hand was ligated again; the operation was a success; a catheter was tried but not successful; the fistula on the left thigh was used for piercing-dialysis; the piercing was pretty touch and very painful;

    December 2006:
    Another pseudo-aneurysm found in left thigh, which resulted in massive haemorrhage; the haemorrhage was stopped but the fistula was ligated;
    At present, the dialysis is conducted through direct piercing of the artery in right hand; the success of piercing cannot be guaranteed; once fails, the dialysis will be undoale.


    Main issues:
    1) Unable to develop native fistula: fistulae made on both arms and left leg but all failed; too risky to take the right leg;
    2) Difficult to plug in the catheter: the vein inside the neck has been plugged so many times that it is too narrow to use, the vein below the right clavicle is also too narrow, the one under the left clavicle is too close to the heart. The vein in the left thigh is damaged; the one in the right thigh can only allow temporary catheter. Long-term catheter is not long enough and gets congested and infected easily, which will constraint the motion of the body.

    Assistance needed in the following:
    1) Operation techniques of long-term catheter implanting; experience of post-operation nursing;
    2) Selection of long-term catheter types


    Notes:
    1) The patient’s abdomen has been operated many times; the peritoneum is incomplete, therefore peritoneal dialysis cannot be conducted;
    2) High PRA, matched kidney transplant operation is not suitable
    3) HCV+ carrier
    4) Some useful data: Long term heme protein is 8-9 grams; after operations, it falls to 7 grams approximately; blood pressure is high, on average 200-220/100-120 (lower limbs); medicine control doesn’t work well; if the blood pressure falls lower than 150/80, the patient will faint; allergic to Cefalexin and Cefradine; allergic to alcohol, shrimps and crabs; allergic to transfusion tube, which means before each transfusion, the air in the tube must be exhausted and the tube itself must be cleaned with physiologic brine;
     
  3. littleiron

    littleiron Little I.N.S.A.N.E IroN

    Joined:
    Dec 19, 2002
    Posts:
    476
    News Credits:
    5
    Trophy Points:
    111
    Likes:
    +5
    [​IMG]
    Ming Feng in his con T-shirt

    [​IMG]
    This's taken in the hospital last week
     
  4. Jux

    Jux Please, call me Steve. Veteran

    Joined:
    Oct 12, 2002
    Posts:
    22,664
    Trophy Points:
    296
    Likes:
    +0
    I dunno, at some point you gotta figure enough is enough and take the risk.
     
  5. netkid

    netkid Where's my Goddamn shoe!

    Joined:
    Aug 19, 2002
    Posts:
    11,217
    News Credits:
    32
    Trophy Points:
    267
    Likes:
    +42
    Jesus Christ. This does not look good. I wish him the best of luck and that he survives the ordeal. May he be present in all our prayers. Good Luck Ming. I'd take a crappy day, heck a crappy week, just so you can have a really good one. Best of luck man, best of luck! I hope he gets better and doesn't have to suffer anymore.
     
  6. Sonscreen

    Sonscreen Casual TF collector<br><b><font color=#FF0000>aksm TFW2005 Supporter

    Joined:
    Sep 15, 2004
    Posts:
    5,610
    Trophy Points:
    241
    Likes:
    +0
    Oh man, I hope your friend pulls through OK. :(  Unfortunately I don't have any experience with this.
     
  7. ckhtiger

    ckhtiger old skool fool

    Joined:
    Feb 18, 2003
    Posts:
    6,318
    Trophy Points:
    232
    Likes:
    +3
    both me and my dad have polysystic kidney disease. he had one transplant 17 years ago, and is getting ready to have another because that one finally failed. this summer he had an operation which sounds like the one your friend is going to have. they put a weird tube in his abdomen so that one end of it sticks out. at night, he hooks himself up to a machine that runs a cycle of fluid into his abdominal cavity to filter his blood through osmosis. it works really well, and is a lot better than regular dialysis.

    I'm not sure what type of help you're looking for-hospitals or the actual supplies-but strong memorial hospital in new york is a major place in the northern U.S. that might be a good place to start. from someone who knows what kidney troubles are like, give your friend my best wishes!

    *edit* sorry, I hadn't read your entire post (it's quite big) but I just realized that peritoneal dialysis cannot be conducted. I guess that makes most of what I wrote pointless. sorry :( 
     
  8. littleiron

    littleiron Little I.N.S.A.N.E IroN

    Joined:
    Dec 19, 2002
    Posts:
    476
    News Credits:
    5
    Trophy Points:
    111
    Likes:
    +5
    It's OK, ckhtiger.

    The local doctors are thinking to treat him with something similar to Balloon angioplasty & stent placement, which is awefully expensive. That hospital operated this a few times in the past... all failed and the partients died. What a huge risk, eh? Even if it success, his life might last only a few years longer.... and I can't even visit him because I'm here in Canada, DAMN.
     

Share This Page